News and Features
Every year Greensboro, North Carolina, holds a Fourth of July parade in
which local organizations form the units. This year members of the
Greensboro Peace Coalition decided--"after some hesitation," admits
chairman Ed Whitfield--to join the line of march. They bought an ad in
the local paper, printed leaflets and developed their own variation on
this year's theme of "American Heroes": large posters of Americans,
including Mark Twain, Albert Einstein and the Rev. Martin Luther King
Jr., who have spoken out against the folly of war.
Though members had been participating in vigils since last October, when
the bombing of Afghanistan began, many expressed qualms about marching
into the thick of their hometown's annual patriotic celebration. But
fifty activists showed up on the Fourth and got the surprise of their
political lives. Along the mile-and-a-half parade route through downtown
Greensboro, they were greeted mostly with applause, and, at the end of
their march, they were honored by parade organizers for "Best
Interpretation of the Theme."
Says Whitfield, "There is a real lesson in this. If you scratch the
surface of the poll numbers about Bush and Ashcroft's overwhelming
support, you get down to a lot of people with a lot of questions. Some
of them are afraid that they are alone in what they are thinking. What
it takes to get them excited and to get them involved is for them to see
someone standing up so that they will know they are not alone."
The post-September 11 experiences of the Greensboro Peace Coalition,
Berea College's Patriots for Peace, the Arkansas Coalition for Peace and
Justice, and dozens of other grassroots groups serve as a reminder that
while dissenters have not always spoken in a single voice, they have had
in common not just their unease with the bipartisan Washington consensus
but the often inspiring experience that there are many Americans who
share their discomfort. Take Jennifer Ellis of Peace Action Maine, who
recalls how overwhelmed Down East activists felt after September 11.
"But then we started to get calls from people saying, 'I don't know what
your organization is, but it has the word "peace" in the title. What can
I do?'" Some callers were already holding vigils, and her group started
sending out weekly e-mails listing them. "We linked people up with local
efforts to fight discrimination against Muslims, and we told people how
to write members of Congress about civil liberties issues," she says.
"Before long, all these people, in all these towns across Maine, were
As with anti-World War I activists who looked to Wisconsin Senator Bob
La Follette, critics of McCarthyism who celebrated Maine's Margaret
Chase Smith's statement of conscience or foes of the Vietnam War who
were inspired by the anti-Gulf of Tonkin resolution votes of Oregon's
Wayne Morse and Alaska's Ernest Gruening, post-September 11 dissenters
found solace in the fact that at least a few members of Congress shared
their qualms. Three days after the attacks on the World Trade Center and
the Pentagon, Representative Barbara Lee, a California Democrat, cast
the only vote against the resolution authorizing the use of force to
respond. Lee's vote earned her death threats and pundit predictions that
she was finished politically, but she won her March Democratic primary
race with 85 percent of the vote. And the "Barbara Lee Speaks for Me"
movement that started in her Oakland-based district has spread; in July
several thousand people packed a Santa Cruz, California, movie theater
to celebrate "Barbara Lee Day." Said Santa Cruz Mayor Christopher Krohn:
"She's become a national moral leader in awakening the movement for
justice, peace and a thorough re-examination of US foreign policy."
Responded Lee: "It must not be unpatriotic to question a course of
action. It must not be unpatriotic to raise doubts. I suggest to you it
is just the opposite."
Senator Russ Feingold, the Wisconsin Democrat who cast the only Senate
vote against the USA Patriot Act's assault on civil liberties, still
marvels at the standing ovations he receives when his vote is mentioned.
"I thought this would be a difficult vote," says Feingold, who recently
earned the best home-state approval ratings of his career. "What I
didn't realize was that a lot of people are concerned about free speech
and repression of liberties, even in a time of war. I didn't realize
until I cast my vote that there was so much concern about whether it was
appropriate, whether it was allowed, to dissent after September 11. I
think that for a lot of people, my vote told them it was still
appropriate to dissent."
Some members who have challenged the Bush Administration have suffered
politically--notably Georgia Representative Cynthia McKinney, who lost
an August Democratic primary. But most are secure in their seats, and
one is even being boomed as a potential Democratic presidential
contender. Representative Dennis Kucinich's February speech condemning
the bombing of Afghan civilians and the repression of American civil
liberties drew an overwhelmingly positive response that Kucinich, an
Ohio Democrat, says is evidence of broad uncertainty about militarism
abroad and economic and constitutional costs at home.
Democratic Representative Tammy Baldwin of Wisconsin led several House
members in writing a letter in December questioning White House policies
that emphasize bullets and badgering as opposed to diplomacy and
development; and John Conyers of Michigan, the ranking Democrat on the
House Judiciary Committee, has kept the heat on the Justice Department
regarding civil liberties--often with the support of Judiciary Committee
chair James Sensenbrenner, a conservative Republican. Still, says
Kucinich, "our constituents are perhaps more prepared than Congress for
the debate that should be going on."
Bill Keys, a school board member in Madison, Wisconsin, shares that
view. Keys's October 2001 refusal to require the recitation of the
Pledge of Allegiance in city schools earned three days of broadcast
rebukes from radio personality Rush Limbaugh, physical threats and a
movement to recall him from office. The recall drive fizzled before
winter and, this spring, Keys was elected president of the board. "The
strange thing is that once I became identified as this awful radical,
people started coming up to me and saying, 'Don't you let them shut you
up,'" recalls Keys. "If the last year taught us anything, it's this:
Yes, of course, if you step out of the mainstream you will get called
names and threatened. But you will also discover that a lot of Americans
still recognize that dissenters are the real defenders of freedom."
Sparks fly in the debate over the war on terror.
An antigay ballot initiative spurs some surprising political
Workers in the country's most dangerous industry are struggling for
The one thing that activists on every side of the abortion debate agree
on is that we should reduce the number of unwanted pregnancies.
America's rate of unwanted pregnancy is a huge public health scandal,
but five years after being approved by the FDA, emergency
contraception--the use of normal birth control pills to block pregnancy
within seventy-two hours of unprotected sex--has yet to fulfill its
potential. Part of the problem has to do with the difficulty of getting
EC in time; many doctors don't want the hassle of dealing with walk-in
patients, many clinics are closed on weekends and holidays (times of
peak demand) and some pharmacies, like Wal-Mart's, refuse to stock it.
That anti-choicers falsely liken EC to abortion and tar it as a
dangerous drug doesn't help.
The main barrier to EC use, though, is that most women don't know what
it is. To spread the word, Jennifer Baumgardner and I have written an
open letter explaining how EC works, how to get it and why women should
even consider acquiring it in advance. If every Nation
reader with access to the Internet forwards it to ten people and one
list, and those people do the same and on and on, it could reach
thousands, even millions of women. Like ads for Viagra, only not spam.
Activism doesn't get much easier than this!
An Open Letter About EC
The one thing that activists on every side of the abortion debate agree
on is that we should reduce the number of unwanted pregnancies. There
are 3 million unintended pregnancies each year in the United States;
around 1.4 million of them end in abortion. Yet the best tool for
reducing unwanted pregnancies has only been used by 2 percent of all
adult women in the United States, and only 11 percent of us know enough
about it to be able to use it. No, we aren't talking about
abstinence--we mean something that works!
The tool is EC, which stands for Emergency Contraception (and is also
known as the Morning After Pill). For more than twenty-five years,
doctors have dispensed EC "off label" in the form of a handful of daily
birth control pills. Meanwhile, many women have taken matters into their
own hands by popping a handful themselves after one of those nights--you
know, when the condom broke or the diaphragm slipped or for whatever
reason you had unprotected sex.
Preven (on the market since 1998) and Plan B (approved in 1999), the
dedicated forms of EC, operate essentially as a higher-dose version of
the Pill. The first dose is taken within seventy-two hours after
unprotected sex, and a second pill is taken twelve hours later. EC is at
least 75 percent effective in preventing an unwanted pregnancy after sex
by interrupting ovulation, fertilization and implantation of the egg.
If you are sexually active, or even if you're not right now, you should
keep a dose of EC on hand. It's less anxiety-producing than waiting
around to see if you miss your period; much easier, cheaper and more
pleasant than having to arrange for a surgical abortion. To find an EC
provider in your area, see www.backupyourbirthcontrol.org,
www.not-2-late.com or ec.princeton.edu/providers/index.html.
Pass this on to anyone you think may not know about backing up their
birth control (or do your own thing and let us know about it). Let's
make sure we have access to our own hard-won sexual and reproductive
The Things You Need to Know About EC
EC is easy. A woman takes a dose of EC within seventy-two hours of
unprotected sex, followed by a second dose twelve hours later.
EC is legal.
EC is safe. It is FDA-approved and supported by the American College
of Obstetricians and Gynecologists.
EC is not an abortion. Anti-choicers who call EC "the abortion
pill" or "chemical abortion" also believe contraceptive pills,
injections and IUDs are abortions. According to the FDA, EC pills "are
not effective if the woman is pregnant; they act primarily by delaying
or inhibiting ovulation, and/or by altering tubal transport of sperm
and/or ova (thereby inhibiting fertilization), and/or altering the
endometrium (thereby inhibiting implantation)."
EC has a long shelf life. You can keep your EC on hand for at least two
EC is for women who use birth control. You should back up your
birth control by keeping a dose of EC in your medicine cabinet or purse.
What You Can Do to Help
Forward this e-mail to everyone you know. Post it on lists, especially
those with lots of women and girls. Print out this information,
photocopy it to make instant leaflets and pass them around in your
community. Call your healthcare provider, clinic, or university health
service and ask if they provide EC. Spread the word if they do. Lobby
them (via petitions, meetings with the administrators, etc.) to offer EC
if they don't.
Make sure that your ER has EC on hand for rape victims and offers it to
them as a matter of policy. Many hospitals, including most Catholic
hospitals, do not dispense EC even to rape victims.
Get in touch with local organizations--Planned Parenthood, NOW, NARAL,
campus groups--and work with them to pressure hospitals to amend their
If you can't find a group, start your own. Submit an Op-Ed to your local
paper or send letters to the editor about EC.
Make sure your pharmacy fills EC prescriptions. Some states have
"conscience clauses" that exempt pharmacists from dispensing drugs that
have to do with women's reproductive freedom.
In 1998 the World Bank notified the Bolivian government that it would
refuse to guarantee a $25 million loan to refinance water services in
the Bolivian city of Cochabamba unless the local government sold its
public water utility to the private sector and passed on the costs to
consumers. Bolivian authorities gave the contract to a holding company
for US construction giant Bechtel, which immediately doubled the price
of water. For most Bolivians, this meant that water would now cost more
than food. Led by Oscar Olivera, a former machinist turned union
activist, a broad-based movement of workers, peasants, farmers and
others created La Coordinadora de Defensa del Agua y de la Vida (the
Coalition in Defense of Water and Life) to deprivatize the local water
In early 2000 thousands of Bolivians marched to Cochabamba in a showdown
with the government, and a general strike and transportation stoppage
brought the city to a standstill. In spite of mass arrests, violence and
several deaths, the people held firm; in the spring of that year, the
company abandoned Bolivia and the government revoked its hated
privatization legislation. With no one to run the local water company,
leaders of the uprising set up a new public company, whose first act was
to deliver water to the poorest communities in the city. Bechtel,
meanwhile, is suing the government of Bolivia for $25 million at the
World Bank's International Centre for the Settlement of Investment
More than thirty years ago, in an essay called "Uncle Tom and Tiny Tim:
Some Reflections on the Cripple as Negro," I suggested that cripples
emulate the civil rights movement by focusing on political solutions to
the problems of living under difficult physical conditions. (It's a lost
battle, but I continue to prefer the term "cripple" to the bland "disabled.") The problems cripples faced seemed as much the result of our inability to
define our needs as they were the fault of a society quite willing to
live with its ignorance of those problems and quite willing not to see
us at all unless absolutely forced to. It wasn't until the late 1960s
that cripples began to believe that they had the right to demand that
America meet their needs.
Anyone who has spent significant time living with a serious physical
condition probably has had an experience similar to the following:
entering a restaurant with another person, he (or she) finds that the
waiter is addressing not him but the person he is with. He is a
category, and categories are simply assumed to be unable to take
responsibility even for something as minor as placing an order. Yet even
such infantilization can seem liberating if the cripple realizes that
the problem it bespeaks is political rather than psychological: One
infantilizes the other by assuming attitudes held by society at large.
And this process is something that the cripple, too, is encouraged to
do. Even Randolph Bourne, as tough a social critic as America ever
produced, looks inward in his famous essay "The Handicapped," published
back in 1911. Writing about other issues, Bourne understands that
political problems demand political solutions. But when it concerns the
cripple, among whose ranks he was numbered, he was curiously
inner-directed and soft.
The demand for the rights of cripples was already under way as I was
writing "Uncle Tom and Tiny Tim." And while I would be happier without
much of the rhetoric of the Disability Rights Movement, to its credit,
it has helped change the consciousness of those who must confront the
world with physical disabilities. Both its success and its burgeoning
political potential seemed wishful thinking in 1969, when I still
dismissed its prospects. But that success was confirmed with the
enactment of the Americans With Disabilities Act in 1990. Despite its
admitted weaknesses, few Congressional acts more deserve the term
"landmark legislation." The Americans With Disabilities Act promised
those forced to live with severe physical impairments the possibility of
legal if not functional equality. Its most profound accomplishment, even
allowing for the vagueness of definition that has come to haunt it, was
to accept the idea that cripples have the right to specific
accommodations that meet their employment needs. For a population
battling the indignities of permanent illness, its promise was
comparable to that of the Civil Rights Act for African-Americans in
Twelve years after its passage, that promise seems about to be swamped
by a legal system in which what constitutes a workplace disability is
undefined and perhaps undefinable. The confusion about what would seem
to be the most elementary of definitions--what is meant when we speak of
a disability--threatens to weaken if not make the act virtually useless.
The cripple's demand for rights still commands a good deal of public
interest and a degree of public sympathy. Yet the Americans With
Disabilities Act has not led to widespread political activity on behalf
of the nation's cripples. Their quest for equality is not only
threatened with that most severe of American sins, being relegated to
political unfashionability, but the question of what a disability is
shows few signs of being resolved in favor of those whom the act was
supposed to help. Recent Supreme Court rulings in which disability was
ill defined must be seen as setbacks for those who look to the judiciary
to enforce what the act called for, a policy of accessibility and
inclusiveness. The Court ruled in April by a 5-to-4 majority in US
Airways v. Barnett that US Airways' seniority system took precedence
over the right of a disabled worker to transfer to a more suitable job.
In Toyota Motor Manufacturing v. Williams, the Court ruled
unanimously that the definition of disability must mean substantial
limitations on abilities "central to daily life," not just the job. And
the Court also unanimously held, in mid-June in Chevron U.S.A. v.
Echazabal, that employers had the right to refuse to hire a worker
whose health they believed might be impaired by performing a particular
For this alone Ruth O'Brien's Crippled Justice is a welcome
addition to the literature on living with disability. A professor of
political science at the City University of New York, O'Brien approaches
her subject armed with an analytical perspective nurtured by her earlier
work. Her first book, Workers' Paradox: The Republican Origins of New
Deal Labor Policy, 1886-1935, already reflected her interest in the
subject of workers' rights. Yet even academic inquiries can be rooted in
personal experience. "Had I not sustained what is now a ubiquitous
workplace injury," she writes, "a debilitating case of bilateral
tendinitis in my hands and forearms, I might never have explored the
development and implementation of...disability policy." Yet the focus of Crippled Justice is neither
personal nor anecdotal. It is a serious inquiry into the history of
public policy as that policy has affected large numbers of men and women
crippled by illness, accident or birth. As serious scholarship is
expected to be, it is factual and analytical. The past few decades have
witnessed a rich expansion of memoirs and essays by writers forced to
struggle with their own physical or mental deterioration, books that
depict what life is like for those who must live it with severe illness.
But the kind of political analysis O'Brien offers in Crippled
Justice is what, I believe, cripples need now.
Analysis demands perspective, particularly when it begins in personal
experience. While bilateral tendinitis may not have the same sort of
consequences as, say, pushing through life in a wheelchair or trying to
earn a living as a blind person, the experience limited O'Brien's normal
ability to function. It turned her temporarily from normal to cripple.
And however temporary an experience, it was also sufficiently
dehumanizing to give her a strong sense of what life is like for those
forced to live with more severe conditions. The first discovery one
makes on entering the shadowy world of cripples is that one no longer
defines need, ability and ambition for oneself. The experience of living
with disability forced Ruth O'Brien to recognize that the cripple must
"struggle over the same issues that women and minorities battle." But
she also saw that the problems cripples faced were in some ways less
soluble and in others more mechanical than the problems of other groups.
Nothing would be more beneficial to cripples as a group than a fantasy
I've held for the past decade--a law that would make it mandatory for
every elected official in the country to live a single week each year as
If nothing else, that would show that the problems involved are as
political as they are psychological. And that is why I am grateful that
Crippled Justice restricts itself to the conditions cripples
confront in the workplace. To the writer, physical disability offers a
personal confrontation. And as is the case with writers, that
confrontation is about language. But what the cripple confronts in the
workplace, as O'Brien shows, are confrontations that have solutions. And
those solutions are political. What she tells us about the history of
disability policy in the workplace may not be as powerful or as dramatic
as, say, Andre Dubus writing about the changes that were imposed upon
his life by the sudden transition he underwent from being a normal man
to being wheelchair-bound. Nor does Crippled Justice offer us the
savage honesty of Harold Brodkey writing about his own impending death
from AIDS. O'Brien's focus is more mundane, which is to say that it is
more political: She is interested in the possibility of a meaningful
work life for those who lack the talent of a Dubus or a Brodkey.
We do not, of course, read memoirs and essays to create public policy
but to recreate individual lives. Yet if the experience of being forced
to live as a cripple is invariably personal, the reality of how
one lives that life is invariably political. I have no choice but to
accept being in a wheelchair. On the other hand, the New York through
which I push myself has any number of choices in how it reacts to my
need for that wheelchair. It is able to define how I live, what is now
subsumed under that horrendous phrase "quality of life," through the
public policy decisions it makes. Such seemingly trivial items as the
condition of the streets through which I push speak less eloquently but
more truthfully of what is or isn't possible for me than Dubus's essays
or my own essays or Nancy Mairs's essays. Public policy defines the
boundaries of the cripple's life. Mundane issues such as the condition
of the streets and the accessibility of restaurants and stores and
theaters (and how the Court defines disability) speak to the cripple's
ability to live with dignity.
The first half of Crippled Justice offers a historical overview
of the rehabilitation of the cripple in America. The ideas dominating
medical and social policy after the end of the Second World War in 1945
were largely formulated by two physicians, Dr. Howard Rusk and Dr. Henry
Kessler. (War may be unhealthy for children and other living things, but
it has done wonders for the fields of prosthetics and rehabilitation
medicine.) Rusk and Kessler are among the villains of the book, since,
along with Mary Switzer, the federal bureaucrat responsible for the
Vocational Rehabilitation Act of 1954, they created models of
rehabilitation still largely followed today. From Freud and even more
from William Menninger, rehabilitation medicine was inspired to shift
its focus from the need to treat the cripple's physical symptoms to the
need to treat the whole person. And the models were psychological.
O'Brien describes "the deep strain of individualism in American
liberalism" as the source of the mistaken path rehabilitation medicine
took. Yet I am not convinced that individualism is so negative in the
life of the cripple. No one can overcome the effects of disability
through mere willpower or a well-developed work ethic--but a
well-developed sense of self helps if one is to be a "success" as a
cripple. One might even suggest that the successful cripple must combine
a free-market head with a socialist soul. Perhaps more than others do,
he needs to see himself as singular. After all, what else can account
for all those memoirs about the singularity of the experience of
disability? The best passage I know about living as a cripple--as moving
to me as Shylock's "Hath not a Jew" speech--wasn't written by a cripple
but by a healthy Saul Bellow at the height of his powers. Put into the
mouth of the poolroom entrepreneur in The Adventures of Augie
March, its power derives from how it speaks for us cripples as it
speaks about Einhorn's aching sense of his individual quandary.
O'Brien is on more solid ground when writing about how Rusk and Kessler
expected the "sick" individual to "adjust" to what they viewed as a
"healthy" society. The cripple unable to make the adjustment was a
social and psychological problem. Even so, one can argue that the
individualism O'Brien finds irritating is the cripple's best chance to
find salvation. Ambition should be made of sterner stuff than turning
all problems into psychological barriers. At the same time, the desire
to get even with an unjust fate shouldn't be dismissed lightly.
Liberalism may have a lot to answer for where attitudes toward the
cripple are concerned, but excessive concern with individualism is not
the biggest item on that bill. Still, the psychologizing of disability
was a mistake for which we continue to pay a price. And it remains, I
believe, the source of the Court's restricted vision of workplace
The conditions cripples face in the workplace cannot be conquered by
their adjusting to normal society but by society making certain minor
but necessary adjustments to their problems. By the 1970s the
psychological definition of the cripple had already shown how limited it
was. But is it better to define the cripple legally? Despite its immense
promise, the Americans With Disabilities Act is, as O'Brien writes, "an
idiosyncratic body of law." Where once cripples had to convince the
world of their ability to meet standards set by normals, they are now
expected to meet thresholds of disability set by a Court that seems
oblivious to the obvious. When the issue is as clear-cut as it was in
the case of the golfer on the PGA Tour, Casey Martin, whose bone
deterioration made it impossible for him to walk the links although it
didn't prevent him from playing golf, the courts seem willing to allow
the spirit of the original act to serve as its definition. But even that
makes the judiciary our "modern-day experts of vocational rehabilitation
because of the idiosyncratic nature of disability." The Court has not
yet claimed the right to define whether an individual is or is not a
cripple. But by insisting on its right to define what constitutes
disability in the workplace, it has assumed the power of defining what
the consequences of being a cripple are. As far as work is
concerned, cripples "have gone from being subjects of medicine to
subjects of law." Whether this is an improvement over the psychologizing
of disability is certainly open to question. The conclusion of
Crippled Justice is not despairing but it is skeptical. And for
good reason. In a valuable study of workplace disability as both a
political and social issue, O'Brien has performed a service to anyone
interested in social justice. Unfortunately, recent Supreme Court
decisions threaten to make her skepticism the book's lasting legacy.
Whether defined by the judges or doctors, it seems to be the cripple's
fate to be defined as the other.
The Nation reported on Dr. Pendergraft's troubles in
"Abortion on Trial" by Hillary Frey and Miranda Kennedy, June 18, 2001.
On its anniversary, two of its authors assess its relevance for today.
Facebook Like Box